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Commit 08668511 authored by Kaya Lange's avatar Kaya Lange
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......@@ -10,7 +10,7 @@ export function HPAbstract(){
from diverse stakeholders to create a responsible, impactful, and ethically sound therapy. Our mission was not just to develop a technical
solution but to create one that aligns with societal values and patient expectations. </p>
<p>Our integrated Human Practices approach was not just an addition to our project—it was the foundation on which every decision was built. By actively
engaging with cystic fibrosis (CF) patients, healthcare professionals, and regulatory experts, we ensured that their feedback directly shaped our
engaging with CF patients, healthcare professionals, and regulatory experts, we ensured that their feedback directly shaped our
project, from design to implementation. Our patient-centered, globally focused approach not only addresses disparities in CF treatment but also sets
a new standard for accessibility and ethical reflection. We extensively documented our methodologies, including CF cell culture protocols and stakeholder
engagement processes, to empower future teams to build upon our success. Our thoughtful integration of diverse stakeholder insights, combined with expert
......
import { ButtonOne, ButtonOneWithScroll } from "../../components/Buttons";
import { H4, H5 } from "../../components/Headings";
import { HPTimeline } from "../../components/HP-timeline";
import { LoremShort } from "../../components/Loremipsum";
import PreCyse from "../../components/precyse";
import { Section, Subesction } from "../../components/sections";
import { useNavigation } from "../../utils";
......@@ -114,7 +113,7 @@ export function HPIntegrated(){
<H4 text="Key Players" id="keyplayersH"/>
<H5 text="High Power, High Interest - Priority Level 4"/>
<p>
Close support and extensive feedback are necessary to successfully implement PreCyse.
Close support and extensive feedback are necessary to successfully implement <PreCyse/>.
Target groups include experts and physicians with expertise in gene therapy and treatment
strategies for cystic fibrosis. The project has a reasonable, responsible, and future-oriented
significance for the world. Furthermore, scientific-technological knowledge and biosafety are
......@@ -142,7 +141,7 @@ export function HPIntegrated(){
<H4 text=" Keep Satisfied" id="keepH"/>
<H5 text="High Power, Low Interest - Priority Level 3"/>
<p>
In order to successfully implement PreCyse, all concerns must be fully considered, even if they
In order to successfully implement <PreCyse/>, all concerns must be fully considered, even if they
may differ from the project interests. CF specialists, bioethics specialists, and regulatory experts
provide important information. Their input is beneficial to the implementation of our project.
These categories of experts help to ensure that the project is ethical and compliant with the law.
......@@ -167,7 +166,7 @@ export function HPIntegrated(){
<div className="mendelowtab" id="mendelow-three" style={{display: "none"}}>
<H4 text="Keep Informed" id="informedH"/>
<H5 text="KEEP INFORMED - Low Power, High Interest - Priority Level 2"/>
<p> <b>Potential users of PreCyse</b> </p>
<p> <b>Potential users of <PreCyse/></b> </p>
<p>
are important for understanding the needs, even if their expertise
may not be sufficient to solve all the problems that arise in the project. It is therefore important to
......@@ -750,13 +749,13 @@ export function HPIntegrated(){
</div>
<div className="col">
<div className="col understandingtab" id="under-reflection" style={{display: "block"}}>
<div><LoremShort/></div>
<div><p>The reflection component of the template is essential in evaluating how stakeholder interactions have shaped the <PreCyse/> project. After summarizing conversations with stakeholders, we analyze the feedback they provided. This reflection process allows our team to carefully consider the insights shared and assess their relevance to our project's goals. By reflecting on this input, we gain a clearer understanding of how external perspectives align or differ from our initial assumptions, fostering an environment of continuous learning and improvement. This stage ensures that we approach the next steps with a deeper awareness of both our project’s impact and the expectations of our stakeholders.</p></div>
</div>
<div className="col understandingtab" id="under-responsibility" style={{display: "none"}}>
<div><LoremShort/></div>
<div><p>Responsibility is embedded in how we engage with stakeholders and respond to the trust they place in our team. By thoughtfully selecting who we reach out to, we demonstrate responsibility in choosing the most relevant and impactful individuals for our project. Additionally, it is our duty to honor the contributions of stakeholders by effectively integrating their feedback into our decision-making process. The template allows us to document these contributions, emphasizing our commitment to not only listen but also act responsibly based on their input. Our responsibility extends to ensuring that stakeholder interests are respected and that their input is actively contributing to the ethical and sustainable development of the <PreCyse/> project.</p></div>
</div>
<div className="col understandingtab" id="under-responsive" style={{display: "none"}}>
<div><LoremShort/></div>
<div><p>Responsiveness is about how we adapt and move forward based on the knowledge and perspectives shared by our stakeholders. After gathering feedback, we assess how it aligns with our project’s objectives and adjust our strategies accordingly. This ensures that stakeholder contributions are not only heard but also acted upon in a timely and constructive manner. The final section of the template emphasizes how these interactions have guided the future steps of the project. Being responsive is crucial for maintaining dynamic and evolving relationships with our stakeholders, demonstrating that we value their input and are willing to incorporate it into our ongoing development.</p></div>
</div>
</div>
</div>
......@@ -771,7 +770,7 @@ export function HPIntegrated(){
</div>
<H5 text="Agenda"/>
<p>
The central goal of the PreCyse project is to develop an innovative gene therapy solution for cystic fibrosis (CF) that is not only technically effective but also socially acceptable and ethically justifiable. The primary questions include:
The central goal of the <PreCyse/> project is to develop an innovative gene therapy solution for cystic fibrosis (CF) that is not only technically effective but also socially acceptable and ethically justifiable. The primary questions include:
</p>
<ul>
<li>How can the project improve the lives of CF patients?</li>
......@@ -785,7 +784,7 @@ export function HPIntegrated(){
<H5 text="Research"/>
<p>
To gain a comprehensive understanding of the needs and expectations, the PreCyse team employed various methods to collect data from relevant stakeholders, including:
To gain a comprehensive understanding of the needs and expectations, the <PreCyse/> team employed various methods to collect data from relevant stakeholders, including:
</p>
<p>
<b>Surveys of CF patients and their families:</b> These provided insights into the specific challenges and needs that CF patients face in daily life. Critical questions regarding safety, accessibility, and the long-term application of gene technology were addressed.
......@@ -802,7 +801,7 @@ export function HPIntegrated(){
</p>
<H5 text="Agenda"/>
<p>
Based on the analysis, several measures were taken to ensure that the PreCyse project is not only scientifically advanced but also socially and regulatorily acceptable:
Based on the analysis, several measures were taken to ensure that the <PreCyse/> project is not only scientifically advanced but also socially and regulatorily acceptable:
</p>
<p>
<b>Integrated feedback loops:</b> Stakeholders were continuously involved, and their feedback was directly incorporated into the adaptation and improvement of the project design. An example of this is the application of Gibbs' Reflection Cycle to ensure that all feedback is thoroughly analyzed and incorporated into future decisions.
......@@ -820,10 +819,10 @@ export function HPIntegrated(){
</div>
<div className="col framecycletab" id="feedcycle" style={{display: "none"}}>
<H4 text="The Feedback Cycle of our IHP Approach" id="feedH"/>
<p>To foster productive conversations and ensure our team maximizes each stakeholder interaction for the PreCyse project, we developed a feedback cycle that outlines a structured approach for our meetings. The first step in our cycle involves listening to each stakeholder's experiences, personal stories, or insights. Our team then follows up by asking relevant questions to dive deeper into the shared information or to introduce new topics or directions in the conversation. Towards the end of the meeting, we ask clarifying questions and reiterate key points to ensure our understanding is accurate and that the stakeholder has no additional input. Finally, we explore new directions and ideas inspired by the stakeholder interaction, encouraging our team to pursue innovative and novel concepts.
<p>To foster productive conversations and ensure our team maximizes each stakeholder interaction for the <PreCyse/> project, we developed a feedback cycle that outlines a structured approach for our meetings. The first step in our cycle involves listening to each stakeholder's experiences, personal stories, or insights. Our team then follows up by asking relevant questions to dive deeper into the shared information or to introduce new topics or directions in the conversation. Towards the end of the meeting, we ask clarifying questions and reiterate key points to ensure our understanding is accurate and that the stakeholder has no additional input. Finally, we explore new directions and ideas inspired by the stakeholder interaction, encouraging our team to pursue innovative and novel concepts.
</p>
<div>
<img src="https://static.igem.wiki/teams/5247/scientific-figures/feedbackcycle.svg"/>
<img src="https://static.igem.wiki/teams/5247/photos/hp/cycle2.svg"/>
</div>
</div>
......
......@@ -10,7 +10,7 @@ export function HPIntroduction(){
const {goToPageAndScroll} = useNavigation();
return(
<Section title="Introduction" id="Introduction">
<H5 text="- Connecting our project to real life"/>
<H5 text="- Connecting our project to real life -"/>
<BlockQuoteB text="Science and everyday life cannot and should not be separated." cite="Rosalind Franklin"/>
<div className="row align-items-center" style={{marginTop: "5vh", marginBottom: "1vh"}}>
<div className="col">
......
......@@ -10,7 +10,34 @@ export function HPOverview(){
text="Human Practices is the study of how your work affects the world, and how the world affects your work."
cite="- Peter Carr, Director of Judging"
/> </span>
<img src="https://static.igem.wiki/teams/5247/photos/hp/overview-final-2-small.webp" alt="Stakeholder Overview"></img>
<img src="https://static.igem.wiki/teams/5247/photos/overview-ihp-final-final-min.webp" alt="Stakeholder Overview"></img>
<p>In the development of our project, we embraced a holistic and human-centric approach, putting people at the core of our efforts. Our goal was to foster interdisciplinary collaboration and open dialogue, ensuring that diverse perspectives shaped the trajectory of our work. Over the course of this journey, we have engaged with more than 80 individuals and institutions, who have significantly influenced our project.
The strength of our approach lies in its interdisciplinary nature. We have brought together representatives from a wide range of categories, each playing a vital role in shaping the direction and success of our initiative. These categories include: </p>
<ol>
<li>
<strong>Patients:</strong> At the heart of any healthcare-related project, patients provide invaluable insights. Their lived experiences, needs, and challenges have guided our efforts to develop solutions that are truly patient-centered.
</li>
<li>
<strong>Healthcare Institutions:</strong> Collaborating with hospitals, clinics, and other healthcare providers allowed us to understand the practical implications of our work and to ensure that our solutions are aligned with the realities of healthcare delivery.
</li>
<li>
<strong>Academia – Research and Science:</strong> By partnering with researchers and scientists from leading academic institutions, we were able to base our work on the latest scientific knowledge and methodologies. Their contributions ensured that our approach is both innovative and evidence-based.
</li>
<li>
<strong>Industry – Entrepreneurship and Business:</strong> Engaging with industry professionals and entrepreneurs enabled us to explore the commercial potential of our project. Their expertise in innovation, business models, and scalability helped us to envision how our solutions could be brought to market and widely implemented.
</li>
<li>
<strong>Government – Biosafety and Ethics:</strong> Regulatory bodies and ethics committees played a crucial role in ensuring that our project adheres to the highest standards of safety, ethics, and compliance. Their oversight has been instrumental in maintaining the integrity and social responsibility of our work.
</li>
<li>
<strong>Local and International Communities:</strong> Our outreach to both local and global communities allowed us to understand the broader societal impacts of our project. These interactions helped us to address diverse cultural, social, and economic factors, ensuring that our solutions are accessible and relevant to different populations.
</li>
<li>
<strong>Public Organizations:</strong> Partnering with non-governmental organizations and public institutions enabled us to align our project with public health goals and contribute to social good. Their mission-driven focus helped us to maintain a sense of purpose and responsibility in all our endeavors.
</li>
</ol>
<p>By engaging with these diverse stakeholders, we have built a project that is not only comprehensive but also adaptable to the multifaceted needs of society. The insights and feedback from patients, healthcare professionals, researchers, businesses, governments, communities, and public organizations have ensured that our human-centric approach remains dynamic, inclusive, and impactful.
In summary, our project reflects the power of collaboration across sectors, disciplines, and geographies. The collective input of more than 80 individuals and institutions has enabled us to create a well-rounded and robust framework that addresses the challenges we set out to solve. We are proud of the interdisciplinary nature of our work and are committed to continuing this inclusive approach as we move forward. </p>
</section>
</div>
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