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Commit 7d8ed4e9 authored by Liliana Sanfilippo's avatar Liliana Sanfilippo
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......@@ -5,6 +5,7 @@ import { timelinedata } from "../data/hptimelinedata";
export function HPTimeline(){
return(
<section id="Timeline" className="section">
<p>Feel free to scroll trough our timeline and learn more about our extensive human-centric approach!</p>
<div className="center">
</div>
<TabButtonRow data={timelinebuttonrowdata} classy="" opentype="timelinecardtabs" closing="timelinepersontabs" />
......
......@@ -5,18 +5,11 @@ export function HPAbstract(){
useTabNavigation();
return(
<Section title="Abstract" id="Abstract">
<p>As the iGEM Bielefeld-CeBiTec team, our project aimed to develop a gene therapy for cystic fibrosis (CF) with a human-centered approach.
From the beginning, we engaged extensively with CF patients, clinicians, regulatory bodies, and researchers to ensure that our solution
addressed real-world needs. We established continuous feedback loops to refine and evolve our project at every stage, incorporating insights
from diverse stakeholders to create a responsible, impactful, and ethically sound therapy. Our mission was not just to develop a technical
solution but to create one that aligns with societal values and patient expectations. </p>
<p>Our integrated Human Practices approach was not just an addition to our project—it was the foundation on which every decision was built. By actively
engaging with CF patients, healthcare professionals, and regulatory experts, we ensured that their feedback directly shaped our
project, from design to implementation. Our patient-centered, globally focused approach not only addresses disparities in CF treatment but also sets
a new standard for accessibility and ethical reflection. We extensively documented our methodologies, including CF cell culture protocols and stakeholder
engagement processes, to empower future teams to build upon our success. Our thoughtful integration of diverse stakeholder insights, combined with expert
guidance in regulatory compliance, nanoparticle research, and gene therapy, ensures that our project is responsible, scientifically sound, and globally
impactful. </p>
<p>As the iGEM Bielefeld-CeBiTec team, we adopted a human-centered approach and delivered an extensive framework of <strong>eight reglementations</strong> for future iGEM teams, establishing <strong>eight frameworks</strong> that were validated through our project. Our methodology was shaped by over <strong>80 interviews with stakeholders and institutions</strong> , creating a comprehensive and multidimensional perspective on the complex challenge of gene therapy for cystic fibrosis (CF). Through <strong>33 key interviews</strong> , we navigated <strong>seven thematic areas</strong> simultaneously, incorporating <strong>five iterative feedback loops</strong> to ensure the project’s refinement at every stage.
</p>
<p> Our approach offers future iGEM teams and the synthetic biology community a valuable blueprint for responsible and ethical project development. By actively engaging with CF patients, clinicians, researchers, and regulatory bodies, we ensured that real-world needs and societal values were central to our project's evolution. Our efforts culminated in a thoughtful, scientifically sound solution, setting new standards for accessibility, patient focus, and regulatory compliance. Future teams can leverage our documented methodologies to further their own impact, ensuring that innovation remains aligned with the needs of those it serves.
</p>
</Section>
)
}
\ No newline at end of file
......@@ -9,13 +9,15 @@ export function HPOverview(){
<h2 id="Overview"></h2>
<img src="https://static.igem.wiki/teams/5247/photos/overview-ihp-final-final-min.webp" alt="Stakeholder Overview"></img>
<figcaption>Figure 1. We </figcaption>
<figcaption><strong>Figure: Visualization of the Human-Centric Approach by iGEM Bielefeld-CeBiTec 2024</strong><p>Our project has been supported by over 80 individuals and institutions, enhancing our integrative human practices. We are deeply grateful for the invaluable feedback and the collective effort of everyone who has contributed to our vision of safe and precise gene therapy through PreCyse. Thank you for your support!
</p>
</figcaption>
<span id="hp-quote"><BlockQuoteB
text="Human Practices is the study of how your work affects the world, and how the world affects your work."
cite="- Peter Carr, Director of Judging"
/> </span>
<img id="overview-stakeholders" src="https://static.igem.wiki/teams/5247/photos/overview-ihp-final-final-min.webp" alt="Stakeholder Overview"></img>
<p>In the development of our project, we embraced a holistic and human-centric approach, putting people at the core of our efforts. Our goal was to foster interdisciplinary collaboration and open dialogue, ensuring that diverse perspectives shaped the trajectory of our work. Over the course of this journey, we have engaged with more than 80 individuals and institutions, who have significantly influenced our project.
The strength of our approach lies in its interdisciplinary nature. We have brought together representatives from a wide range of categories, each playing a vital role in shaping the direction and success of our initiative. These categories include: </p>
<ol>
......
......@@ -627,7 +627,7 @@ export const teammembers: Array<SteckbriefInterface> = [
"Completing ten different emergency tasks at the same time without losing your head",
],
funfacts: [
"As a child I thought I would be arrested if I ate in the car, so I hid my snack as soon as we passed another car. I wonder what my parents had drilled into me",
"My favourite algae is Volvox",
],
favlabmusic: "Upbeat fun songs like Unwritten, C'est la bourgeoisie or Feminenomenom to keep me motivated",
islands: [
......
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