<p>The majority of respondents (62.70%) indicated that they or their relative require medical treatment or therapy daily. Weekly treatment was necessary for 14.59%, while 9.73% needed therapy several times per week. Only 6.49% reported needing treatment either monthly or rarely. The high frequency of daily treatments highlights the heavy burden of managing cystic fibrosis and reinforces the potential appeal of gene therapy, which could reduce the need for constant medical intervention. </p>
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<p>A significant majority, 78.72%, indicated that they would be open to gene therapy if it significantly improved symptoms, while only 1.42% said no. This overwhelming support aligns with the hope patients have for less invasive and more effective treatments. This also reflects the possibility of gene therapy becoming a central treatment method, especially given the heavy therapeutic load CF patients already carry.</p>
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<p>56.76% of respondents reported that they are related to someone with CF, while 43.24% stated they are affected by CF themselves. This likely reflects the fact that many parents completed the survey on behalf of their children, as CF is typically diagnosed at a young age. The high involvement of parents underscores how the disease impacts not just the patients themselves but also their families, who are deeply involved in the day-to-day management of CF. This highlights the importance of considering both the perspectives of young patients and their families when discussing gene therapy and CF treatments, as parents often play a critical role in decision-making regarding new treatment options.</p>
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<Graph.HeardOfCFPublic/>
<p>82.89% of respondents have heard of cystic fibrosis, while 17.11% had not. The high level of awareness about CF suggests that the general public is relatively informed about the condition, possibly due to the visibility of the disease through media, health campaigns, or personal connections to affected individuals. However, the 17% unfamiliar with CF indicates that further outreach is necessary, particularly focusing on this demographic to spread knowledge about the disease and potential treatments, including gene therapy. </p>
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<Graph.HowDidYouLearnPublic/>
<p>The majority of respondents (44.17%) learned about CF through media channels, such as television, news, or the internet. Other significant sources of information include family and friends (25.15%), as well as educational institutions (20.86%). Interestingly, only 3.68% of respondents learned about CF from healthcare providers, suggesting that the disease is more commonly understood through external sources rather than direct medical education. This reliance on media and personal connections highlights the importance of accurate and accessible information in the public domain, especially when considering the introduction of gene therapy as a treatment option. </p>
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<p>56.76% of respondents reported that they are related to someone with CF, while 43.24% stated they are affected by CF themselves. This likely reflects the fact that many parents completed the survey on behalf of their children, as CF is typically diagnosed at a young age. The high involvement of parents underscores how the disease impacts not just the patients themselves but also their families, who are deeply involved in the day-to-day management of CF. This highlights the importance of considering both the perspectives of young patients and their families when discussing gene therapy and CF treatments, as parents often play a critical role in decision-making regarding new treatment options.</p>
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<p>82.89% of respondents have heard of cystic fibrosis, while 17.11% had not. The high level of awareness about CF suggests that the general public is relatively informed about the condition, possibly due to the visibility of the disease through media, health campaigns, or personal connections to affected individuals. However, the 17% unfamiliar with CF indicates that further outreach is necessary, particularly focusing on this demographic to spread knowledge about the disease and potential treatments, including gene therapy. </p>
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<p>The majority of respondents (44.17%) learned about CF through media channels, such as television, news, or the internet. Other significant sources of information include family and friends (25.15%), as well as educational institutions (20.86%). Interestingly, only 3.68% of respondents learned about CF from healthcare providers, suggesting that the disease is more commonly understood through external sources rather than direct medical education. This reliance on media and personal connections highlights the importance of accurate and accessible information in the public domain, especially when considering the introduction of gene therapy as a treatment option. </p>
